Jan Janus - Since 2012
I am going on 3 years surviving this debilitating disease called Pulmonary Hypertension. Mine is cause by a hereditary gene and I am the 4th person in my immediate family to have it. I am bringing awareness not only for a Cure, for this incurable disease, but awareness for the many patients that may be being misdiagnosed due to other conditions.
The disease affects our lungs and can be misdiagnosed as Asthma, COPD, Emphysema, and/or Sleep Apnea. With early diagnosis we have a better way of phighting to live a longer healthier life.
There are so many researchers out there to help us with our fight, but the funding is sparse because of the disease being such a rare disease. With donations from generous people like yourselves, the Pulmonary Hypertension Association can continue to help with further research on medications, a cure and funding to help those in need of medications get them who can not afford them.
My family and I will be partaking in the Phenomenal Hope 5K walk for the 2nd year, and I hope we can add you to our list of supporters in the phight for our lives for a cure to this disease.